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0:06 Brail TV. Peace be upon you, brothers 0:36 and sisters. Praise be to God, we are 0:41 blessed with the grace of God to be 0:43 together in this health room event, 0:46 which hopefully will make us more adept 0:49 at maintaining our physical and mental 0:51 health to become servants of God worthy 0:54 of His pleasure and forgiveness. Let us 0:58 not forget to recite the salawat ( 1:00 praise be to God) to our beloved 1:02 Prophet Muhammad (peace be upon him). 1:05 Hopefully, we will meet again in the 1:08 moments we long for in the final days. 1:12 Brothers and sisters, today the one who 1:15 came to our room is Dr. Rudi Sutadi. He 1:18 is already at the end of the room. 1:20 Peace be upon you, Doctor. And peace be 1:24 upon 1:24 you. Alhamdulillah, good news. 1:28 Alhamdulillah. 1:30 So, since the doctor is ready and able 1:32 to fill in again, let's continue with 1:33 the autism topic, Doctor. 1:36 Yes. Please. 1:38 What exactly is it now? It's about the 1:43 problem of incorrect therapy for autism 1:46 . 1:47 Ah, so the therapy should be X, but Y 1:50 is done like that, for example. Well, 1:53 brothers and sisters. Autism sufferers 1:58 are extraordinary people who, God 2:00 willing, can be cured, whether it's 2:02 their own family, neighbors, or anyone 2:04 else. Hopefully, this information about 2:09 incorrect therapy for autism can also 2:12 be a part of us to persuade people who 2:16 happen to need it. Okay, Doc. Let's 2:19 start. I'm welcome. Please. Okay, thank 2:25 you. Assalamualaikum warahmatullahi 2:27 wabarakatuh. 2:28 Waalaikumsalam. 2:30 Alhamdulillah wasalatu wasalamu ala 2:32 rasulillah waa alihi wasbihi waman 2:35 walah. Amma ba ya. Uh thank you to 2:39 Rasil for giving me the opportunity to 2:43 convey. Uh so this is the third episode 2:48 of the series on 2:51 incorrect diagnosis and incorrect 2:52 therapy for autism. Last time we 2:56 discussed incorrect diagnosis. People 3:02 with autism are often said to have 3:04 speech delay, ADHD, or GDD. Uh, it 3:12 turns out that's wrong, and it's 3:15 actually easy to at least screen for 3:23 autism. Let's discuss it through chat. 3:29 There are only three questions. Well, 3:32 we've discussed that. Now, God willing, 3:37 we will discuss the problem of autism 3:41 therapy or the mistakes in autism 3:45 therapy. Okay, thank you. 3:49 Bismillahirrahmanirrahim. Yes, so this 3:54 is why autism therapy is wrong? Yes. 3:58 Yes. As I've discussed before, in 4:03 Indonesia, there are actually no autism 4:07 therapy centers. When my son Abdul was 4:12 diagnosed with autism in 4:15 January 1997, E, but as the number of 4:18 autism patients increased, the centers 4:20 that treat children with special needs 4:23 (ABK) are not specifically for autism. 4:28 So, for example, for deaf children, 4:31 Down syndrome, or mental retardation, 4:35 they then accept autism patients and 4:39 simply apply the methods or therapies 4:43 they have mastered that are not for 4:47 autism. Parents don't know that, right? 4:52 So, it feels like the child is being 4:55 treated but isn't progressing, or 4:58 there's a little progress, but it's not 5:01 cured, it's not cured. Our goal, God 5:05 willing, is to be cured. Okay, apart 5:11 from that, the history of autism 5:18 diagnosis itself dates back more than a 5:26 century, to be precise, between 1908 5:31 and 1911. Ms. Nuning and I weren't born 5:36 yet. There was a psychiatrist named 5:42 Euchun Blowler who saw a characteristic 5:48 of schizophrenia. Schizophrenia is a 5:52 mental disorder or mental illness in 5:55 adolescents and adults. They withdraw, 6:00 like to be alone, do their own 6:02 activities, and don't want to have 6:05 social contact with those around them. 6:11 That's termed autism, derived from the 6:15 word "auto-self." Well, between 1938 6:21 and 1943, Leo Kenner saw 11 children, 6:25 some as young as one year old. He saw 6:31 that they had characteristics of autism 6:34 . In this case, the characteristics of 6:39 autism mean they are solitary, lack 6:42 social contact, lack eye contact, 6:44 prefer to play alone, and so on. Well, 6:48 he kept remembering the term autism 6:52 from Eugen Blowler. However, mental 6:58 illness was known at the time, and even 7:03 now, it only occurs in adolescents and 7:08 adults, never in children. Therefore, 7:14 Leo Kenner then called it infantile 7:19 autism, autism in childhood. So, mental 7:25 illness in childhood. So, from the 40s 7:31 to the 60s, autism was mistakenly 7:34 thought of as a mental disorder in 7:37 children. So, it's not surprising that 7:45 in the early days, autism treatment, 7:50 and even now, involved psychiatrists, 7:54 mental health specialists, and 7:57 psychiatrists. Because, of course, 8:03 children were thought to be crazy, 8:05 right? So, the treatment was like 8:09 treating mental patients. They were 8:14 treated in a mental hospital. Then, if 8:18 they had a tantrum, they would be given 8:21 a restraint jacket, a jacket wrapped 8:23 around the entire body, so their hands 8:26 couldn't move. Well, in the 30s, mental 8:33 patients were treated with 8:38 electroconvulsive therapy (ECT). Well, 8:45 it was also applied to autism at that 8:49 time. So, they put a soda stick on 8:57 their forehead. The right eye is in a 9:02 row. Well, the brain becomes weak, 9:05 right? Well, in the 50s, the first 9:10 psychotropic was discovered. So, the 9:15 first drug for mental illness was 9:18 discovered in the year 1950, called 9:21 Torasin. It was then used for autism 9:26 too. And so on. There's an opinion from 9:31 William Wols. William Walls wrote a 9:36 book called Nutrient Power by William 9:43 Wall, PhD. Heal your biochemistry and 9:48 heal your brain. Well, William Walls ' 9:55 opinion is not my personal opinion, 9:57 it's William Wols's opinion. So don't 9:59 get mad at me like that. Conventional 10:03 psychiatric practice is very primitive. 10:06 You can read about it in his book. Why? 10:12 They rely on chemical drugs, ignoring 10:15 the individual's biochemistry. The drug 10:20 is chemical, it should consider the 10:22 individual's biochemistry. One example 10:26 is, there's a drug for depression with 10:32 the assumption that depression is only 10:34 related to serotonin deficiency. Well, 10:39 then therapy with the SSRI or SSRI 10:42 class of drugs is carried out. Well, 10:46 for example, a well-known trademark is 10:50 damaged. Don't get mad at me for this, 10:54 because the silver was actually written 10:56 by William Walls. If you want to get 10:59 mad, it's Mr. William Walls. So he said 11:04 that psychiatrists are one size fits 11:11 all. So, if you're depressed, just use 11:15 the product. But there's not just one 11:19 size, there's SML and XL. Well, WS 11:31 analyzed 300,000 blood samples 11:36 and 2,800 urine samples. What did he 11:39 find? He found that depression can be 11:45 grouped into five biotypes based on the 11:51 results of blood tests. And for each of 11:56 these five biotypes, there are 11:59 nutritional therapy protocols. Well, 12:03 for example, depression with sub-fatty 12:06 folate deficiency on SSRI therapy will 12:13 worsen the depression 12:17 and they can even commit violence. What 12:21 happened after the market of the drug 12:24 in 1988? There were 50 school shootings 12:28 . Of those 50, 40 were the perpetrators 12:32 . So, 80%of the shooters used drugs. 12:39 Okay. So, if we use the DSM to diagnose 12:45 autism, right? In DSM 1 in 2002, DSM 2 12:52 in 2008, autism was defined as 12:56 schizophrenic reaction childhood type, 13:02 mental illness, or childhood 13:07 schizophrenia. Well, in DSM 3 in 2009, 13:14 it was still listed as infantile autism 13:18 , a mental illness in childhood. DSM 3R 13:28 was in 1987. Because after years of 13:32 research, it turned out that this was a 13:35 disorder, uh, biochemical, 13:38 neo-neurobiological in autism. So, uh, 13:44 I started to realize, yes, it was 13:47 called autistic disorder, but the 13:50 mental nuance was still strong. It 13:55 wasn't until 1994 that it was called 13:58 PDB, Pervasive Developmental Disorder, 14:01 a passive developmental disorder. So, 14:05 this is a developmental disorder, not a 14:08 disability disorder. So who should be 14:12 treating developmental disorders? Yes, 14:19 pediatricians, not psychiatrists. Well, 14:26 in DSM 4 TR 2000, it was the same, just 14:31 a revision of the text in DPDD. Then, 14:35 in 2013, the DSM5 officially designated 14:41 ASD, Autism Spectrum Disorder. So, it 14:46 wasn't that long ago, 2013, or less 14:49 than 10 years ago. Okay. Now, this 14:56 therapy. So, the therapies generally 15:05 used in Indonesia and around the world 15:08 are very wrong. As I said, they aren't 15:16 methods developed for autism, but are 15:21 simply applied without research. What 15:27 are they? Sensory integration, OT, 15:31 occupational therapy, or speech therapy 15:41 . Then there's behavioral therapy. Then 15:46 there's VB verbal behavior. Well, later 15:51 , God willing, we'll discuss this wrong 15:56 . 15:57 Then, after that, which one is wrong 16:01 and which one is right? Only ABA ( 16:07 applied behavior analysis) and BIT 16:10 biomedical intervention therapy have 16:15 been researched and proven effective 16:19 and efficient in curing autism. Curing 16:23 isn't just about fixing. So the goal is 16:27 recovery. The term effective and 16:30 efficient has been proven effective and 16:32 efficient. What does it mean by 16:35 effective, efficient, and achieving 16:40 healing in the shortest possible time? 16:44 So, if we start early therapy, well, 16:48 for children under 3 years old, it 16:51 takes about 2 to 3 years, or if they 16:55 are still under 5 years old, it takes 16:58 between 5 and 10 years, about 3 years, 17:02 maybe a little more. If they are in 17:08 their teens, it takes even longer, and 17:12 maybe it doesn't reach 100%. Okay. So, 17:21 this is important for parents, 17:24 especially for doctors, to master 17:27 autism screening, which takes less than 17:31 5 minutes. But yes, if you are in a 17:36 busy doctor's office, with 50 or 100 17:40 patients, 5 minutes is very valuable. 17:47 If one patient takes 5 minutes, 100 17:49 patients takes 500 minutes. How many 17:52 hours is that, Ms. Nun? 17:54 Yes. 17:54 Yes. E is an all-night practice that 17:58 doesn't finish. Okay, yes. So, only ABA 18:06 applied analysis and BIT biomedical 18:08 intervention therapy have been proven 18:11 effective and efficient in curing 18:13 autism. Proven through research, not 18:22 just statements, testimonials. Well, in 18:28 Indonesia, my wife, Mrs. Isa, and I 18:33 developed and even advanced EBA, namely 18:40 smart ABA, 18:41 and we launched smart in 2011. I've 18:48 been developing it since 1997, 18:50 intensively since 2009 together. Then 18:55 in 2011, we launched smart ABA and 18:58 smart bit. So it's proven to be 19:05 effective and efficient, namely because 19:07 healing is achieved. Efficiently, in 19:10 the shortest possible time, healing 19:12 will be achieved. Well, unfortunately, 19:17 the therapy commonly used by almost all 19:21 clinics and large hospitals that treat 19:25 autism, even teaching hospitals, it's a 19:28 shame, especially teaching hospitals, 19:32 are like water towers, sharing their 19:35 water, sharing their knowledge with all 19:39 of us. But why are clinics in teaching 19:46 hospitals even implementing the wrong 19:49 therapy, which is not developed for 19:52 autism. And what's more, there is no 19:59 evidence to support the use of these 20:01 therapies for autism. In fact, there is 20:05 already a statement from the New York 20:07 State Department of Health. That 20:10 there's no supporting evidence. Well, 20:14 in medical institutions, they promote 20:22 evidence-based medicine. Therapy based 20:27 on evidence, based on evidence. But why 20:33 , specifically for autism, don't they 20:36 want to use therapies with proven 20:40 evidence base? Yes, I'm also curious, 20:46 why is it that for other diseases, 20:49 evidence-based medicine is touted, but 20:53 not specifically for autism? This is 20:59 strange. Please, those in educational 21:02 institutions, answer yes. Well, they 21:06 generally use a combination of sensory 21:11 integration speech therapy, 21:14 occupational therapy, and behavioral 21:19 therapy. Well, let's discuss speech 21:24 therapy, or speech therapy, which 21:28 wasn't designed or developed for autism 21:32 therapy. Well, maybe some of you still 21:39 remember my discussion about speaking. 21:45 In Indonesian, there's only one term 21:47 for speaking. In English, there's speak 21:52 , speak, talk, and speech, speech, 22:02 speech. Well, in this case, speech 22:10 therapy is speech therapy. It's 22:16 intended to improve speech, not to 22:21 improve speech. Well, for autism, 22:27 speech therapy isn't a problem, right? 22:33 Well, let's also discuss why the term 22:36 speech delay is wrong for autism. Well, 22:41 they don't have a speech problem but a 22:43 pre-speech problem or speaking problem. 22:47 Well, this is speech therapy to improve 22:53 speech in diseases caused by stroke, 22:56 among others. They can already talk, 23:01 can already speak. It's just the speech 23:07 problem, because for example there is a 23:10 paralysis problem in, uh, in the tongue 23:13 , in the lips, in the mouth, oral motor 23:17 , basically, or deafness. They can 23:21 speak, but we don't understand them. Uh 23:27 , but they can communicate using sign 23:29 language. With a cleft lip, we also 23:34 have difficulty understanding what they 23:36 are saying, right? It can be wrong, 23:39 right? 23:41 Hey, even if the cleft lip or cleft 23:45 palate has been operated on, they can 23:49 speak but still have speech problems. 23:54 Well, speech therapy is done for CP, 23:58 cerebral pollstering, stuttering, or 24:02 cluttering. Well, cluttering is 24:07 speaking too fluently. 24:11 Too fast so that the words pile up, uh, 24:15 the words are termed as if someone is 24:18 gargling. 24:21 Okay. Well, this sensory integration 24:28 therapy is not for autism. The NYSDOH 24:34 New York State Department of Health 24:37 expert panel. They created guidelines 24:42 that they published in 7 eh 99 then 24:46 2007 then 2017. Eeah maybe that means 24:50 every 10 years, until 2027 again, ee 24:54 they will issue guidelines. According 25:01 to the New York State Department of 25:04 Health expert panel, sensory 25:06 integration SI is not recommended for 25:09 autism therapy. There is no research 25:14 evidence that supports the 25:16 effectiveness or benefits of sensory 25:18 integration for autism. So, why are 25:22 clinics in teaching hospitals still 25:26 using SI? Once again, where is the 25:30 evidence base? Yes, it has even been 25:34 clearly stated by the NYSO. FBO has no 25:40 evidence, yes. It can be accessed on 25:47 their website. 25:49 The 25:50 www.health.ny.govgment is short and 25:56 debit government. So this is official, 25:58 yes. Well, slash community/infancy 26:04 children/almost undo intervention/ 26:09 disorder/autism, yes. Okay. Well, 26:20 there's a very interesting part in the 26:25 NYS recommendations in 2017. There are 26:34 four statements. The first is that 26:37 there's no research evidence. The 26:41 second is that they can't recommend it. 26:46 Sensory integration therapy cannot be 26:50 recommended for autism therapy. The 26:54 third is that they say sensory 26:57 integration therapy is being considered 27:01 . So, if it's being considered for use, 27:07 even though there's no evidence. They 27:17 say it's to avoid conflict with other 27:21 proven therapies. But then, don't use 27:27 it. Why are you so shy? Hehe. 27:30 Now, the fourth statement is even more 27:33 interesting. So they conveyed to the 27:43 parents, "Ma'am, sir, there's no 27:46 evidence that SI is used for autism, 27:51 but we still want to do it. Now, if 27:56 parents were given a clear explanation, 28:01 would they still want it? Well, the 28:05 problem is, they weren't given an 28:07 explanation that there was no evidence. 28:11 This is actually the fourth statement 28:15 from NYS in OH, which requires an 28:18 informed decision from the parents. 28:24 After it was clearly stated, there is 28:27 no adequate research evidence that 28:30 sensory integration is effective for 28:32 treating autism in young children. 28:36 There isn't any, there is no research 28:40 evidence that sensory integration is 28:43 effective for autism therapy. Yes. Now, 28:47 what is the definition of effective? It 28:49 means achieving a cure. There isn't any 28:52 , it doesn't achieve a cure. If we have 28:56 the flu, for example, there is a 28:59 medicine, the doctor says there's no 29:02 evidence that this medicine can cure 29:05 the flu. Hey, but I want to give it to 29:08 you, do we want to take that medicine? 29:11 Why, Doc? I have to pay for that 29:14 medicine. There's no evidence. It's 29:18 different if this medicine is still 29:19 being researched. This medicine is 29:21 still being researched. Is it free? Pay 29:24 . Ah, so it's like this, like this, 29:26 like that. Right? But okay, there's no 29:31 proof. Just eat, okay? E definitely 29:36 won't get better, okay? Okay. 29:40 Occupational therapy now. My wife, Mrs. 29:46 Lisa, said that autism patients aren't 29:50 treated for their muscles, but for 29:53 their brains. E because generally, if 29:59 there are no other problems, there are 30:01 no muscle problems. Well, there's the 30:06 term occupational therapy, and there's 30:08 the term physiotherapy, to put it 30:10 simply. Physiotherapy is for large 30:15 muscles. So, for example, a stroke 30:19 patient has trouble walking. He 30:24 can't walk or is partially paralyzed, 30:28 so his walk is different from that of 30:32 people who haven't had a stroke. Well, 30:37 physiotherapy is done. Well, 30:40 occupational therapy is how to occupy, 30:43 to control. For example, let's say this 30:47 ee disorder is a problem with small 30:50 muscles, fine muscles with fine motor 30:53 movements. For example, what? Holding a 30:57 pencil too tightly, holding it too 31:00 tightly, too weak to fasten a button. 31:05 Well, fastening a button. Those of us 31:09 without those problems take it for 31:14 granted. It's free. us. His father 31:18 never taught him how to button up by 31:21 himself. There are children who have 31:26 problems with their fine muscles, fine 31:28 motor skills, making it difficult for 31:30 them to button up. Well, that's 31:33 occupational therapy. Well, the problem 31:40 is, uh, these therapies, speech therapy 31:44 , sensory therapy, occupational therapy 31:49 , behavioral therapy, they implement 31:53 EBA, even though they don't really, uh, 31:58 implement EBA, they implement EBA 32:01 haphazardly or e-EBA-an or fake, uh, 32:06 but that's it, they implement the 32:10 curriculum in EBE. They say this is 32:13 occupational, this is speech, ah, this 32:17 is sensory integration, right? Well, 32:22 then this behavioral therapy is not for 32:26 autism. Well, I have to tell you about 32:33 the history, the term behavioral 32:37 therapy. So in this world, there used 32:43 to be two major schools. One is called 32:49 operating, proposed by Skinner in 1988. 32:54 The other is respondent conditioning or 32:59 condition reflex, proposed by Pavlo in 33:04 1927. Well, uh, then each has its own, 33:14 uh, there is Their followers were 33:17 developed by their respective followers 33:22 until finally, wow, there was a gap 33:26 between them, so they had to be married 33:31 between operating and respondent 33:34 conditioning. Finally, towards the 60s, 33:40 or so, the end of the year, towards the 33:45 60s, they were married to become 33:49 behavior modification. Unfortunately, 33:55 this marriage was short-lived, so in 33:58 the 60s, they divorced again, and 34:05 became two terms. One was ABA applied 34:09 behavior analysis. The other was 34:12 behavior therapy. Well, the term 34:16 behavior therapy was officially 34:20 introduced in 3 when JBRT, GBRT, eh, 34:25 the Journal of Behavior Research and 34:29 Therapy was launched. Meanwhile, ABA 34:34 applied analysis was officially 34:38 introduced in 8 with the publication of 34:42 JABA J, the Jaba Journal of Applied 34:46 Behaviour Analysis. Well, this behavior 34:51 therapy or behavior therapy is not for 34:56 autism. Behavior therapy or behaviour 35:02 therapy is for treating pathological 35:05 behaviors or pain therapy. For example, 35:09 what? 35:10 Chronic pain. So you feel sick. You're 35:19 tired, you don't wake up feeling 35:21 refreshed, and chronic pain is caused 35:24 by problems with chronic disappointment 35:27 , distress, stress. Addictions such as 35:33 alcoholism, drugs, cigarettes, anorexia 35:38 , depression, anxiety, insomnia, 35:42 obesity, 35:44 marital problems, etc. So, if a husband 35:47 and wife are not getting along, 35:50 fighting, this is a problem of 35:52 disappointment. The therapy is with 35:56 beer. Now there is also something 35:59 called CBT, cognitive behavioral 36:01 therapy, right? Well, this is for sick 36:05 behavior. Why use the term behavioral 36:09 therapy? Behavioral therapy, maybe 36:12 because in their ears it sounds more 36:15 like therapy. 36:18 Yes, 36:18 yes. Well, if EBA is for autism, it 36:23 doesn't sound like ABA applied analysis 36:28 . There are no therapies that are not 36:32 solid, yes, it doesn't kick like that. 36:35 Well, if ABA is widely used, yes, in 36:43 the field of management, yes, in the 36:49 field of sports. Well, that's why 36:55 American, European, Russian, Chinese 36:59 sports are advanced because they use it 37:04 . 37:06 Then for vocational skills, for example 37:12 , training pilots, yes, if we look at 37:15 the Kpit, there are many panels. The 37:21 panels are then grouped, studied, eh, 37:24 each group itself has how many panels, 37:27 how many ee switch button like that huh 37:31 . 37:32 What are these for 37:34 one by one? Then what is this related 37:38 to? This panel is related to what other 37:43 panels huh? If for example this light 37:47 is on, which button should be pressed 37:49 huh? This light is on meaning there is 37:53 a problem with the brakes huh. This 37:56 light is on because the problem is that 37:59 the plane's wheels can't retract after 38:01 takeoff huh. Well, vi verbal before huh 38:09 . This is actually Skinner's origin. In 38:17 7 years he gave a lecture at a 38:19 university I forget, Harvard if I'm not 38:23 mistaken. 38:25 If I'm not mistaken Harvard University, 38:28 Harvard Medical School. He talked about 38:32 verbal behavior, human speech behavior. 38:39 You know, he said that there are five 38:42 types of human speech behavior that can 38:49 be grouped into five verbal behaviors, 38:55 namely MEN. M is for example the 39:00 TT tag and intraverbal echoic 39:05 autoclitic huh. Well then I was strange 39:11 , I don't know since when this FBI was 39:15 only in ee just conveyed by Skinner 39:19 that ee verbal behavior is like this. 39:25 Then in 2 years he wrote a book on 39:27 verbal behavior. I have his book, yeah, 39:31 when I often went to America I bought 39:34 it, yeah verbal behavior. Well, 39:39 so verbal behavior isn't a therapy 39:41 method, it's used for therapy. That's 39:45 why if For example, if we join, I've 39:52 never joined because I only know 39:56 stories from those who have 39:59 participated, that verbal behavior, eh, 40:04 they use it for autism. So, for example 40:10 , they say,' Em, their child is told to 40:14 say cake, right? 'So, then parents who 40:19 know about their child's condition, you 40:23 know, my children, our children can't 40:27 talk yet, why are they told to say cake 40:31 , and what if they don't say cake? The 40:36 trainer's answer was strange. Yes, they 40:38 can't. They have to, they have to be 40:41 able to say cake. Well, that's what ABA 40:45 has, there are steps, there are stages, 40:49 namely we train them to prepare, then 40:53 after that, eh, imitation skills, then 40:57 imitation of motor movements, mouth, 41:01 mouth sores, then imitation of vowels. 41:08 Imitate A, O, U, E, I, like that. Then 41:14 syllables, words, sentences. Then we 41:19 use it to answer questions, to label, 41:21 to read, for one-way communication, 41:24 two-way communication, conversation, 41:26 right? Well, there are stages and 41:31 techniques. There's something called 41:35 DTT. DTT for nonverbal programs is only 41:39 one. As for verbal There are several. 41:45 Then there are the DT technique, IO, 41:48 and others. Initial PROM, Immediate 41:52 PROM, E-Modeling PROM, and others. Then 41:58 , there's one thing I need to point out 42:05 : among doctors, there's an opinion 42:13 that autistic children don't need to 42:18 have a diet. Some even go to the 42:22 extreme and say," What's a junk diet? " 42:27 This is due to a dissertation from a 42:39 pediatrician who was pursuing a 42:43 doctoral degree. 42:47 I have no personal issues with him. But 42:52 in science, we often undergo peer 42:56 reviews. So, I'm saying this to convey 43:02 the truth. Why is dieting so much hype 43:10 among doctors when it comes to autism? 43:15 In fact, it's commonplace in medicine 43:17 for other illnesses, not something new. 43:25 Dieting is a medical science. Dieting 43:32 has been around for a long time and is 43:35 recognized by the medical world and 43:39 applied to various diseases. The ones 43:48 that people generally know are for high 43:57 cholesterol and diabetes. But for 44:02 children, there are...A childhood 44:05 disease called PKU, PKU, ven ketone 44:09 urea, MSUD, maple syrup urine disease, 44:13 right? Well, why do they have to stop 44:17 this? In BKU there is a deficiency of 44:21 the enzyme phenyl alanine hydroxylase. 44:26 Whereas in MUD there is a deficiency of 44:29 the enzyme alpha ketoid dehydrogenase. 44:33 Yes. So in PKU venyl ketone urea, they 44:38 are not allowed to eat foods containing 44:42 high levels of the amino acid phenyl 44:46 alanine. Low levels are allowed. High 44:52 levels include soy, cheese, various 44:56 nuts, various grains, beef. Beef, right 45:01 ? Huh. 45:02 Lamb, chicken, fish, eggs, milk, nuts, 45:06 grains, right? Well, soy, cheese, milk 45:11 are also not allowed in autism. Well, 45:15 with PKU there is no problem, right? Uh 45:23 , but when autistic children are told 45:25 they must eat soy, cheese, milk, why is 45:27 there such a fuss? And there is a 45:31 scientific basis for this through 45:33 research. Well, in MSUD, they are not 45:38 allowed to eat foods containing the 45:41 acids aminolin, isoleucine, and valine. 45:46 Those three amino acids. If Earlier, 45:49 there was only one amino acid, venyl 45:51 alamin, and it was high. Low levels are 45:54 allowed. This is not allowed, even if 46:00 it's low. What are some examples? Milk 46:02 and its derivatives. Meat, again, soy, 46:08 gluten, 46:11 eggs, nuts, grains, seeds, avocados, 46:14 algae, seaweed, peas, etc. Well, in 46:17 MSUD, milk and its derivatives are soy 46:21 gluten. Well, if 46:26 we give autism patients milk and its 46:28 derivatives, soy, gluten, and its 46:30 derivatives, why is there such a fuss? 46:35 IBM has this, IBM has an evidence base, 46:39 there's research evidence. So why is 46:44 there such a fuss? But for example, 46:50 sensor integration, there's no evidence 46:53 , but it's still used. This is so on 46:59 one side, it's like that, but on the 47:01 other side, it's also like that. Well, 47:05 in the doctoral dissertation research, 47:11 there were many flaws in the research. 47:17 At that time, I was like, wow, the 47:20 results of his research, this is a 47:24 dissertation, it's not a joke, why 47:27 doesn't it need to be dieted like that? 47:32 Wow. I'm the one who handles autism. 47:38 and during this time studying the 47:41 importance of diet for autism, I really 47:45 wanted to know, not just want to know, 47:49 I really wanted to know, so I contacted 47:53 him to ask if I could get a full copy 47:57 of his dissertation, he allowed me to. 48:03 Then he copied it, not a copy, right? 48:07 Did he make a lot of them? Apparently, 48:11 there were some that needed to be 48:13 reviewed at the library, and I got one. 48:16 Heeh. 48:18 Then I also read that it appeared in 48:21 Tempo magazine from June 16 to 22, 48:25 2014. Then on the fkfk website. page 48:33 and newsdetail d ehid274, but now I 48:37 don't know why it can't be accessed 48:40 anymore. He. 48:42 So, what are the flows? There are six 48:48 flawed flows. First, sample selection, 48:53 I will discuss them one by one. Second, 48:56 exposure to the subject group. Third, 48:59 placebo in the control group. This is a 49:02 common research, ee or ee, exposure to 49:07 subjects and controls. 49:10 So, the fourth is what is being studied 49:13 . The fifth is vs. the conclusion. The 49:17 sixth is vs. his personal opinion. So, 49:20 false research flaws in sample 49:23 selection. I read on page 34 that it is 49:29 written on the inclusion criteria. 49:34 Children with ASD (Autism Syndrome 49:37 Disorder) aged 2 to 10 years. Then he 49:42 wrote that they received GFCFIN free 49:45 cash-free regularly for at least 3 49:48 months. First, regarding the minimum 49:53 period of 3 months, autistic children 49:58 cannot be pegged 50:01 at 3 months. Some have seen visible 50:06 improvement, while others have not 50:09 because it requires a longer was-out 50:12 period. This is related to the reason 50:15 why it is related to their metabolism, 50:20 how severe their metabolic problems are 50:23 , their ability to do was-out. Second, 50:29 how long and how much they have been 50:33 exposed to it. Well, I doubt this too. 50:42 Because on page 70 it says that they 50:52 were given ee cookies. They were given 50:58 cookies. Many of the children didn't 51:03 want them, didn't like them. Why didn't 51:07 they like them? There are also reasons 51:09 why I will explain later. So it's not 51:12 surprising that they didn't like them. 51:14 First, they are autistic children who 51:15 haven't been diagnosed, they are indeed 51:17 picky eaters. They have difficulty 51:20 eating other foods, only certain foods. 51:25 Second, the problem is the ingredients 51:29 used in ee, so it was written that many 51:37 children refused even if they were 51:39 given milk, even if it was mixed with 51:43 milk. That's it. 51:45 Huh. I was shocked when I read this, I 51:50 could even jump up and down. I was 51:54 wondering why it was stated on page 34 52:01 that the inclusion criteria were 52:04 gluten-free and casein-free for at 52:07 least 3 months. Why is it that because 52:17 for this study, the children didn't 52:20 want to consume the cookies, the 52:24 parents mixed them with milk, if they 52:28 had actually been in milk. Well, what 52:34 often happens is when we ask parents," 52:37 Have they been in milk? "" Okay, Doc. 52:44 Let's pursue it further. Is it 100%true 52:47 that he doesn't get it at all or does 52:51 he like to be given it occasionally? 52:54 Yes, Doc. If he's sick, if he doesn't 52:59 feel like eating or once a week I give 53:02 him milk, right? Ee no, not often, Doc, 53:06 like that. E or yes every day, Doc, but 53:11 I've reduced it a little. Well, what 53:16 they said he's been given milk, it 53:18 turns out he hasn't been given it at 53:21 all. He hasn't been given it at all. 53:25 It's impossible if his parents have 53:29 been on a milk diet because just for 53:33 research, they sacrificed his milk in 53:37 cookies mixed with milk like that. Okay 53:42 . So if we give an example of ee 53:50 because like this, if a child who 53:52 hasn't been given it or ee his diid is 53:55 haphazard likes to be given it 54:01 occasionally or sometimes gets caught 54:03 out, that's because he has a younger 54:05 sibling, so 54:08 his sibling is bottle-fed and is 54:10 snatched by his autistic older sibling 54:12 or the rest of his siblings, like that. 54:15 Ee well, we can liken it to black ink 54:21 thick with a glass filled with clear 54:23 water, right? Well, for those who 54:28 haven't been on a diet, that's when 54:31 parents don't see the difference. What 54:37 I mean is a glass filled with thick 54:39 black ink. If we drop black ink, it 54:43 won't be visible that black ink has 54:46 entered there, right? 54:50 But if you're on a diet, really on a 54:53 diet, it's like a glass filled with 54:57 clear water, if you drop just one drop, 55:01 you'll see at least black lines. Well, 55:06 parents who have been on this diet, if 55:10 there's even a small leak. Even the 55:15 therapist is aware, right? Ma'am, this 55:18 leaked yesterday, yes, the diet, Ma'am. 55:22 When I was on Eid holiday, it leaked 55:25 like that. You can see the difference 55:28 in appearance. Well, before we continue 55:33 , this is still long, 55:37 maybe it's the current era. Hey, how 55:40 are we going to get there, Mbak Nun? Or 55:43 maybe there are questions that have 55:45 already come in or what, or should I 55:47 continue until tomorrow morning? I 55:51 think we need to answer the questions 55:54 first, ee, 55:55 if we don't finish, we can do it next 55:58 Thursday. I'm 56:00 God willing. 56:02 Okay. This is asalamualaikum, Doc. I'm 56:06 Siti. Our first child is autistic, now 56:09 he's 13 years old. The problem is, when 56:13 my child is bored, he likes to attack, 56:15 throw tantrums, and pull out his hair. 56:18 How can we get our child to stop 56:20 attacking and throwing tantrums, Doc? 56:23 Because now our child is no longer 56:25 receiving therapy. The problem is that 56:28 it can't be covered by the government 56:30 because he's over 11 years old. 56:33 Independent therapy costs a lot, right, 56:35 Doc? Okay, that's all my question. 56:39 Thank you. Yes. Please, Doc. 56:41 Yes. Okay. So, if a child hasn't been 56:49 on a diet, we shouldn't say that this 56:55 child is drunk, drunk on morphine, 56:58 drunk on alcohol. Well, why? God 57:03 willing, we'll discuss it at the next 57:06 meeting. Uh, milk is turned into 57:09 morphine, wheat milk is turned into 57:12 morphine, then sugar is turned into 57:14 alcohol. Uh, and so on, there are nine 57:18 types of diets that must be followed. 57:21 Well, if we like seeing people drunk, 57:27 they are out of control. They just do 57:33 whatever they want because it 57:35 suppresses their higher functions, so 57:38 They do things that are beyond good 57:40 manners, right? Oh, and they don't even 57:45 realize they're doing it. Even if 57:48 someone is drunk, they're not drunk 57:50 after they're done. When I wake up from 57:53 being drunk, I don't know I did this or 57:55 that. So, the way to do it is first, 58:02 diet, and second, do EBA. Yes, yes, 58:07 good and proper therapy for EBA is not 58:10 that kind of fake therapy that costs a 58:14 lot of money. Why? This is like a 58:20 disease, not just a runny nose that can 58:22 be treated with over-the-counter 58:24 medicine. But it requires treatment. 58:28 The treatment is not in a regular room, 58:31 but in the ICU. The ICU intensive care 58:35 unit. What does intensive mean in the 58:39 ICU? It's not just about having 58:43 monitoring equipment like that. 58:50 Intensive in the ICU means intensive 58:53 diagnosis. Intensive diagnosis means 58:59 that patients in the ICU are like 59:02 airplane flights, there can be changes 59:05 at any time, turbulence and so on. 59:10 So, nurses and doctors have to be 59:13 intensive in diagnosis, looking at the 59:16 monitors, paying attention to the 59:18 monitors, and then making a diagnosis. 59:22 What is this? Why? Then intensive 59:27 therapy. Intensive therapy after 59:31 receiving it, "Oh, this is probably 59:33 because of this. Yeah, it's like 59:36 therapy, right? It's not like oh this, 59:38 this, this." Then he just ignored it. 59:41 Well, the patient died. But intensive 59:45 intervention. Well, the therapy was 59:48 intensive. So, then why is treatment in 59:52 the ICU expensive? If in that room, one 59:57 nurse, I forget, ee, the ratio is 10 or 1:00:01 20 patients, right? 1:00:04 But in the HCU, it's even less. One 1:00:12 nurse for how many? Two patients, if 1:00:15 I'm not mistaken. In the ICU, at least 1:00:19 one patient, one nurse. Yes, sometimes 1:00:30 something happens to the patient, all 1:00:33 the nurses who are on duty gather there 1:00:36 to help each other. Why? Sometimes the 1:00:41 patient they are caring for also 1:00:44 experiences turbulence and needs the 1:00:47 help of other nurses, right? So, it's 1:00:54 not surprising that if you want to get 1:00:56 better, you need intensive care at a 1:01:04 high cost. Well, this is Ms. Nini, I'm 1:01:10 also confused about the fate. How can 1:01:15 you help those who are less able or 1:01:19 unable, right? Yes, it's possible if 1:01:26 there is an endowment fund, maybe 1:01:30 something like that. Yes, or an 1:01:36 endowment fund developed in a business 1:01:41 or maybe something, ee, CSR from this, 1:01:49 from big companies, right? Hey, don't 1:01:53 just use it for CSR, which is for other 1:01:57 activities. Right? Well, maybe Rasil 1:02:03 could coordinate to help, what for? If 1:02:11 the Kit Abutism Center team can help, 1:02:14 they can call out without pay. The most 1:02:19 important thing is that the therapists 1:02:22 must be paid enough. If there's no 1:02:27 therapy, the therapists aren't paid 1:02:30 enough, they work hard, and then how 1:02:32 will they cover their daily needs, how 1:02:34 will 1:02:36 they pay for their rent? Well, that's 1:02:44 why Ms. Nuning, maybe Rasil has 1:02:47 channels to SR or others. Actually, in 1:02:55 the past, the government already had 1:02:57 something called PLA, autism service 1:02:59 centers. If I'm not mistaken, how many 1:03:02 were there? 10 or so across Indonesia? 1:03:05 Well, if I'm not mistaken, the plan was 1:03:07 for each province to have one PLA. But 1:03:14 unfortunately, they used a method that 1:03:17 wasn't for autism. They used S I O TW, 1:03:22 right? He. 1:03:24 Well, that's not for autism. In the end 1:03:28 , there was no progress, and in the end 1:03:31 , if I'm not mistaken, all PLAs in all 1:03:34 autism service centers were closed. 1:03:39 It's a shame, though, that the 1:03:42 government's funding, God willing, is 1:03:45 sufficient. So, we only help with the 1:03:54 scientific aspects and implement them 1:03:56 properly and correctly. My wife and I 1:03:59 once helped PLA Aceh. 1:04:05 We even helped set up the therapy room, 1:04:09 the tables, chairs, CCTV, and digital 1:04:12 recorders. We helped, we provided them 1:04:18 for free. But then, when the leadership 1:04:23 changed, the IBA was no longer used. 1:04:26 When it was used, three children were 1:04:29 successfully educated in regular 1:04:31 schools and were cured. That's right, 1:04:35 Ms. Nuning. Please think about this. 1:04:39 It's true that autism is a genetic 1:04:43 disorder that can be cured. The only 1:04:48 genetic disease that can be cured so 1:04:52 far is medical science. And more and 1:04:58 more autism patients are not cured if 1:05:00 they are not treated properly and 1:05:02 correctly. This could lead to a lost 1:05:05 generation, Ms. Nun. This is 1:05:08 not something to be taken lightly, Ms. 1:05:10 Nuning. So, if the doctor said this, 1:05:14 it's a coincidence that someone asked, 1:05:17 Doc. Autism in childhood is thought to 1:05:20 be Mental disorder. We as parents don't 1:05:24 really know what's wrong with him. So 1:05:26 we have to take him to the doctor. 1:05:29 Doctor, what is it, Doc? Because if 1:05:32 it's considered a mental disorder but 1:05:33 it's not, it's a shame. Then there's 1:05:36 another question, this one, when we're 1:05:38 at the end of the day, Doc. It's hard 1:05:40 to eat. What's the trick to get my 1:05:42 child to eat? My autistic child was 1:05:45 diagnosed two years ago. He's now 6, 1:05:49 five, almost six. But the question is, 1:05:53 he's having trouble eating. What's the 1:05:55 trick to get him to eat? 1:05:58 Okay. So, here's the thing, uh, what I 1:06:02 said was a misconception, that in the 1:06:05 past, autism was thought to be a mental 1:06:08 illness and therefore treated by 1:06:10 psychiatrists. The therapies were, uh, 1:06:16 now they're using psychiatric drugs, uh 1:06:19 , drugs, psychotropic drugs, and then 1:06:26 other doctors, even pediatricians, were 1:06:29 influenced by the psychiatrists' 1:06:31 knowledge. So, autistic patients who 1:06:35 went to pediatricians who didn't have 1:06:39 expertise were given psychotropics too. 1:06:44 Well, unfortunately, this science of 1:06:48 autism has developed outside of 1:06:51 educational institutions. And I don't 1:06:56 know why. Those currently in 1:07:01 educational institutions don't want to 1:07:06 follow the right path. I don't know why 1:07:11 . So, even now, even if an autism 1:07:19 patient is taken to a psychiatrist, 1:07:22 even 1:07:24 to a pediatrician, they're given 1:07:27 psychotropic medication. There are so 1:07:33 few doctors in Indonesia, you can't 1:07:37 count them on one hand. Five. That 1:07:43 means there are only five, not even 1:07:45 five, who have mastered proper and 1:07:48 correct autism therapy. It's a shame, 1:07:52 how many are there in Indonesia? 270 1:07:55 million people, not even five. Actually 1:08:00 , if educational institutions want to, 1:08:03 they shouldn't be shy about taking so 1:08:05 long. We will share our knowledge. So 1:08:11 far, we have already given five special 1:08:19 training sessions for doctors related 1:08:22 to drugs and supplements. 1:08:24 He. 1:08:25 Well, those in medical institutions 1:08:30 shouldn't be shy about it, because why? 1:08:35 This science is very broad. It's 1:08:37 impossible for one person to master it 1:08:39 all. But, my colleagues who actually 1:08:43 treat autism, don't be shy about 1:08:47 learning from the less than 1:08:51 five doctors in Indonesia. Yes, the 1:08:55 good and correct ones. If the ones that 1:08:58 are not correct, there are many. Well, 1:09:02 then about yes, if you really want to 1:09:06 know who it is, you can contact 1:09:10 08898.006.000 or at kitaba.com kida.com 1:09:19 . Well, that can be given, 1:09:23 yes, given information if you ask about 1:09:26 this now, this or that, yes, it's free. 1:09:30 But if it's specific therapy guidance, 1:09:33 there is a consultation fee, yes, per 1:09:37 month, yes. Okay. Earlier, 1:09:43 the child had difficulty eating and 1:09:44 didn't want to eat. Well, autism 1:09:47 patients are picky eaters. They only 1:09:52 want to eat certain foods and generally 1:09:55 , they consume large amounts of 1:09:57 forbidden foods. Ee, there are children 1:10:01 aged 3 years, 5 years who only want to 1:10:05 drink milk. In a day, 10 or 20 bottles 1:10:09 of milk other than milk they don't 1:10:11 drink, yes. Because this is their 1:10:15 morphine addiction. Ee, ee, people on 1:10:18 morphine don't like to eat, right? 1:10:24 Well, after dieting, being forbidden to 1:10:27 eat forbidden foods, finally they have 1:10:30 an appetite. Some can even eat four 1:10:36 times, 5 times, and once a day. Some 1:10:40 eat once a day. Well, then they have 1:10:45 more varied appetites. They want to eat 1:10:49 this, eat that. Yes, in the past, there 1:10:52 were some who didn't like food with a 1:10:55 rough texture, especially rough. But on 1:11:00 the other hand, there were those who 1:11:02 didn't like food with a soft texture. 1:11:05 So how do you do it? It's easy to do it 1:11:09 well and correctly. How do you do it? 1:11:14 Well, God willing, we will have regular 1:11:18 EE training, we will hold EBA training 1:11:22 and IT training. Well, for ABA training 1:11:27 , it is handled with applied behavior 1:11:30 analysis or smart, smart applied 1:11:33 behavior analysis, we have an event on 1:11:36 August 26, 27, 20, 28, Friday, Saturday 1:11:41 , Sunday. Well, in two weeks, that 1:11:44 means we will have EBA training. 1:11:50 Insyaallah, there will be training 1:11:52 there, Miss. So, it's actually easy to 1:11:54 handle it, as long as you know. Well, 1:11:57 as long as you know. Well, those who 1:11:59 have the knowledge can easily handle it 1:12:03 . Okay, Miss Nuning, that's it. 1:12:05 Yes. So the important thing is to know 1:12:08 and that can be followed in the class 1:12:10 that Dr. Rudi will and has already 1:12:12 conveyed it. 1:12:14 Finally, Ms. Nuning. Ask someone who is 1:12:16 knowledgeable, okay? 1:12:17 Yes. Okay, we'll close this statement, 1:12:21 Dr. Rudi, because our time is nearing 1:12:23 the end, and beforehand, friends, if 1:12:25 you have any questions, maybe your 1:12:28 phone numbers haven't been recorded yet 1:12:30 , they are 0889 0889 and 800600. So, 1:12:42 the team of doctors at ABA Grand Wisata 1:12:46 AA 11, numbers 56 to 58 in South Tambun 1:12:49 are ready to assist you. Okay, Doc. At 1:12:54 the end, please do. 1:12:56 Yes. So, we have explained in previous 1:13:01 weeks that the wrong diagnosis, namely, 1:13:04 ee, autistic children are said to have 1:13:07 speed delay or ADHD or ee, KDD, yes, 1:13:10 when in fact, it is wrong. Well, then 1:13:15 it's actually easy to screen whether 1:13:18 this is a possibility of autism or not. 1:13:22 There are three questions in the chat, 1:13:24 yes. This can be done at the integrated 1:13:27 health post (posyandu), at doctor's 1:13:30 practices, ee during registration. For 1:13:34 these questions, parents just have to 1:13:36 check the box, okay? The doctor will 1:13:41 see, ee, no need to ask any more 1:13:43 questions, A quick glance in just a few 1:13:46 seconds can lead to a conclusion, "Oh, 1:13:48 this is most likely autism or this is 1:13:51 possibly autism or still possibly 1:13:53 autism or most likely not autism," like 1:13:55 that. Then ee after ee is screened, it 1:14:00 is sent to a doctor who is an expert in 1:14:04 autism. ee who is expert in diagnosis 1:14:09 may be many, but those who are expert 1:14:12 in good and correct therapy are less 1:14:14 than five, right? ee then yes, after an 1:14:19 early diagnosis, don't forget to 1:14:22 immediately carry out early 1:14:25 intervention. Because the younger the 1:14:30 age, the faster it will be completed, 2 1:14:34 to 3 years, ee and ee, the chance of 1:14:37 recovery is 100%greater, right? But at 1:14:42 any age, like the child you asked 1:14:45 earlier, whatever the age, we carry out 1:14:50 ee intervention, right? ee so in 1:14:57 America, I often ee not often asked ee 1:15:00 often there are questions from 1:15:02 participants whose parents ask the 1:15:05 speakers, "How early is early?" They 1:15:09 ask, "Eng, how early is early therapy?" 1:15:13 "Well, the extreme diagnosis of autism 1:15:18 is now being treated intensively and 1:15:22 properly starting today at least in the 1:15:27 next few days to make preparations, 1:15:31 okay? So, whatever your child's age, 1:15:36 please immediately get proper and 1:15:40 proper therapy. Make preparations 1:15:44 because, God willing, autism is curable 1:15:48 , autism can be cured, God willing. 1:15:52 That's it. 1:15:55 Thank you very much, Dr. Rudi and 1:15:57 Ikhwan Akhwat. As previously said, it's 1:16:01 a shame that the PLA autism service 1:16:03 center doesn't exist now. Hopefully, in 1:16:06 the future, somehow, there will be 1:16:08 another one and it will be much easier 1:16:10 for those of us who need it. What is 1:16:13 clear is that one thing we must believe 1:16:16 is that autism can be cured, Doc. Thank 1:16:19 you very much. Good afternoon and God 1:16:22 willing, we will continue in the coming 1:16:25 Thursdays, okay? Billahi taufik wal 1:16:27 hidayah. Wassalamualaikum warahmatullah 1:16:30 wabarakatuh. 1:16:30 Thank you very much. Alhamdulillah. 
